G. Sottilotta, D. Messina, M. Battazza, A. Buzzi
Abstract
The large allocation of human and economic resources to face the pandemic and the lockdown mobility restrictions led the community of persons with haemophilia to be resilient and adaptable, engaging in adopting new methods to ensure their continuity of care. This study aimed to evaluate the emotions which have affected the haemophilia adult patient's daily life, during the first year of pandemic and what behaviors have been adopted to face the socio economic re strictions including lockdown, social distancing and self isolation, as well as the limited access to Hemophilia Treatment Centres (HCT).
An 18-item anonymous online survey for adult PWH was translated into four languages and was conducted in 2021, from February to April. The survey revealed that in a condition of social isolation, it is the experience of a sense of uncertainty that prevails, which, although it is not possible to eliminate completely, can however be managed, if continuity in relationships and support is guaranteed even at a distance...
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