M. Battazza Freire
Abstract
The idea of creating a special issue of OJHM for the World Hemophilia Day, came from the real purpose of this anniversary: to give visibility, to share scientific and social information, to increase knowledge about hemophilia and the other rare bleeding diseases. For this reason, the editorial staff wanted this time to change the typology of the magazine and of the articles: they are focused not on scientific research, or on the description of medical and therapeutic experiences, or on clinical cases, but on the activities of the associations of patients with hemophilia.
These national and local associations carry out constant information activities, social assistance and sometimes support for hospitals and centres for the treatment of haemophilia all over the world, with the aim of improving medical care for hemophilia patients, guaranteeing access to care and helping patients and their families to escape from anonymity.
(»Download here full PDF version)
